HNPP

Where to donate and fundraise for HNPP

HNF fund
Copyright: Hereditary Neuropathy Foundation

You may have spotted the lack of posts for the past few months. This is solely blamed on that age-old issue of brain fog, as well as notoriously rebellious hands. Hence, while I was Google searching “How to get rid of brain fog with HNPP”, lo and behold, I find what appears to be one of the first official donation pages for HNPP! (I have definitely never come across this before, but I may be wrong).

Thanks to the Hereditary Neuropathy Foundation (HNF), a leading patient advocacy organisation for those affected by hereditary neuropathy including Charcot-Marie-Tooth Disease, GAN (Giant axonal neuropathy) as well as HNPP based in the US, there is now a place to raise money for important research.

As many with the condition know, money is scarce and not many health professionals are currently researching the condition, with only the exception of a few including the renown Dr. Jun Li, a professor of the Department of Neurology, Brain Institute and Center for Human Genetics Research at Vanderbilt University in Nashville, Tennessee. His research lab pages can be found here.

And HNF are very keen on people to get involved in fundraising:

So if you have any ideas on how to raise money, or want to get involved – feel free to comment below.

Last, but not least, here is the link to the page: Hereditary Neuropathy Foundation