Resources

Best Informational Websites:

HNPP.org – https://hnpp.org – This was the original go-to site for all things HNPP – only archives now accessible

CMT UK – http://cmt.org.uk/ – For Charcot Marie-Tooth disorder, with HNPP resources

Global Registry for Inherited Neuropathies – https://neuropathyreg.patientcrossroads.org/

HNPP Info – http://www.hnpp.info/

GeneReviews – https://www.ncbi.nlm.nih.gov/books/NBK1392/ – Clinical review into HNPP

NHS HNPP Information – http://www.nhs.uk/conditions/hereditary-neuropathy

Neuropathy Support Network – https://neuropathysupportnetwork.org

Emotional Respite UK – http://www.emotionalrespite.co.uk/ – Counselling for disabilities

The Mighty – https://themighty.com – huge amount of blogs designed for health

Networks:

HNPP Help

HNPP AND CMT / NEUROPATHY SUPPORT

Disease Maps | HNPP

Blogs To Follow:

Jon’s Slice Of Life| Life With HNPP – https://jsol.wordpress.com/

The Girl With The Purple Cane – http://www.thegirlwiththepurplecane.com/

Jessica Out Of The Closet – https://jessicaoutofthecloset.co.uk/

Robin Mazumder – https://robinmazumder.com/

Tingling Through Life With HNPP – http://erfelijkedrukneuropathie.blogspot.co.uk/

HNPP And Me – http://bundleoftomacula.tumblr.com/

HNPP German Forum – http://www.hnpp.de/

My Life With CMT – https://cherrysdays.wordpress.com/

Princess In The Tower – http://princessinthetower.org